It’s Just a Word, Right?

December 31, 2023

Each new year I come up with a word that encapsulates what I am looking forward to experiencing, working through, or part of a goal setting plan. However, for 2024 it’s been a particularly nuanced process due to the cancer recurrence.

It’s just a word, right?

I need a word that cannot be construed to add to the struggle or inadvertently require more hardship to see it through. Words like overcome, strength, courage…fall into this category. I believe my mettle has been thoroughly proven and require no more trials by fire.

I could choose something seemingly erroneous or trite. Peace, joy, freedom…blah, blah, and the smiling facade is oh so thin.

Even finding a word that means disease free could have heavy consequences of death or disability…

All this to say, words matter in their simplicity and complexity.

What we focus on is how choices are made, how we evolve, and how we take a path.

I’m again choosing life while facing tremendous unknown and expected pain with hardship.

Perhaps the word, a word will coalesce into existence along the way.

January 3, 2024

Finally, a word, the only word that speaks to my needs comes in the form of a video that scrolled by on a social media platform.

The Word:

in·​ten·​tion in-ˈten(t)-shən 

  1. a: what one intends to do or bring about. b. the object for which a prayer, mass, or pious act is offered.
  2. determination to act in a certain way; resolve
  3. intentions plural: purpose with respect to marriage
  4. import, significance
  5. a process or manner of healing of incised wounds
  6. concept especially: a concept considered as the product of attention directed to an object of knowledge

https://www.merriam-webster.com/dictionary/intention

Of course, some of the above definitions do not suit my purposes, however, several do fit with the narrative I must create to again fight the beast known as adenocarcinoma. The resolve necessary to properly armor my mind, body and spirit is no small task for the grueling work ahead. With each step intention must be set and followed through with. With every choice intention must be clear and firm. With every “bad” day intention to get up and go another round must be within reach. With every breath, the intention is set to draw another. Regarding time with the intention of value, memory making, and without wastefulness.

Again, with intention, I choose to live, fight, and love through this next season of cancer battle on my own terms.

I’m curious what your theme or word for 2024?

Thank you for reading. I appreciate you sharing my posts in the hope someone else will feel seen and heard.

Desirre Andrews, RN, BSN, CPM, RM, Brain Squirrel Wrangler

TikTok: @des.andrews

Instagram: @desirreandrews

Photos are courtesy of Raw Pixel.

All Rights Reserved 2024

Losses and Gains

Cancer is a thief.

Cancer is a grifter.

Cancer is a psychological weapon.

Cancer creates a sacrificial lamb.

Cancer is a MOFO of the highest order.

The Straight Dope

I was just coming to grips with all I had been through fighting round one of adenocarcinoma. The depth of illness, exhaustion, pain, anguish, and trauma is immeasurable. Terrifying my husband and children broke my heart every single day.

As of June there was no evidence of disease. The treatment had been successful. Statistically I had a 60% chance of being alive in 5 years. Not great, but better than it could have been. I was finally coming to grips with living under the threat of the grim reaper.

Fast forward to mid-December and abdominal pain hit and wouldn’t resolve. After the third trip to the ED and doing everything to clear the diagnosed severe constipation, I was told I had a complete bowel obstruction caused by a cancerous growth. I needed emergency surgery and a colostomy.

It took a week and a half for pathology to reveal the type of cancer. There are no suitable English words to indicate my feelings on the matter.

And now I face another showdown. In many ways I know it’s going to be so much worse than before. The first time it remained static within my pancreas before it was cut out along with several healthy organs prophylactically. This time it’s in my lymph system. Absolutely fecking horrifying. METASTATIC adenocarcinoma. Oh, there aren’t enough expletives to cover it.

Losses and Gains

It’s difficult to enumerate the number of losses I’ve experienced since being diagnosed with cancer. And yet I will give it a try dear reader.

  • Time - stolen, shifted, corrupted, occupied, shrunken, and ticking away like a countdown clock with a surprise ending.
  • Body snatcher – body parts removed prophylactically to attempt to outwit the cancer, layers of scars added to my abdomen, poison running through my veins to slow or kill the beast, an angry liver left in the wake of the onslaught, stealing my beautiful hair, adding years to my external surfaces, exceptional fatigue, feeling ill, spoiling my taste buds and appetite, and the temporary disruption of GI function requiring a colostomy bag until chemotherapy ends.
  • Physical intimacy – removing the desire for sex and fearing physical intimacy from the numerous surgical and chemical side effects I’m left with.
  • Certainty – the knowing I would be here for my children and grandchildren (unlike my mother) until one of them had to care for me, living a long life like my grandmothers, aunts, and uncles, and believing being a fit and healthy person would keep me safe from cancer’s clutches and other bodily illnesses.
  • Goals – I’ve been called to be a Family Nurse Practitioner for years. a couple of weeks ago I withdrew from the grad school program I was in. Why? My time is exponentially more valuable than it was before, and prioritizing NOW was necessary. If I beat this, I can revisit the process. I’m heavily grieving this loss.
  • Peace of Mind – the disconcerting whisper constantly reminding me how close to the veil between the mortal world and the afterlife I am. Even in laughter, the sadness remains. It’s the elephant in the room wherever I go.

The gains are much nicer to think upon than the losses. Truthfully, they are also more difficult to remain focused on because the losses are so noisy and demanding of attention.

  • Abiding friendship and support – I clearly know who my ride or die people are. My community shows up without fail in every way imaginable. You know who you are, and I love each of you to the bottom of the ocean and to the ends of the universe. I couldn’t do this work without you in my life whether near or far. I know without a doubt someone will be there to carry me if I cannot walk on my own. I’m accepted faults, quirks, and weirdness. I’m so thankful to know who my people are.
  • Family – The closeness within my family structure is BEAUTIFUL. My husband, children, siblings, aunties, cousins, nieces…the list goes on. I know without a shadow of a doubt I’m valued, loved, cared for, and supported. I. Am. Wanted.
  • Love – immeasurable, overflowing love from the corners of the earth. It keeps growing and expanding. It’s the invisible staff I hold myself up with, the cloak I cover myself with, and the air I breathe.
  • Time – each minute of my life holds a higher value than before cancer. I may not know the number of breaths I have left; however, I do know that this cancer is trying to steal as many from me as possible. Every person I spend any time on or with should know how important they are. I will never again take for granted any moment.
  • Faith – our Creator is bigger than all things. I’ve no fear of dying. I am secure in the promised afterlife. It’s the timing I’ve a problem with. Believing the calls upon my spirit matter and will come to fruition in the proper timing. I’m not a red shirt who will suffer a useless and meaningless death.
  • Trust – in myself to do the work and stay the course. Trusting in the informed choices I make. I will leave no option unturned, undone, or unsaid to get to the other side of this. Trust in my strong still healthy body to show u and FIGHT for her life.

The only risk factor for adenocarcinoma I had was being over 50 though pancreatic cancer is generally a disease of the over 70 population. Cancer is on the rise in every demographic regardless of risk factors, screening matters.

Thank you for reading. Thank you for holding space and making room for my vulnerability. I appreciate you sharing my posts in the hope someone else will feel seen and heard.

Desirre Andrews, RN, BSN, CPM, RM, Brain Squirrel Wrangler

TikTok: @des.andrews

Instagram: @desirreandrews

Photos are courtesy of Raw Pixel.

All Rights Reserved 2024

Daily Rules of Engagement for Mental Health Stability

While coming to grips with a new secondary cancer diagnosis I’m experiencing profound situational depression and sadness. Though strangely there is a slight lifting of the oppressive feelings with the pathology report indicating a return of the adenocarcinoma likely because I now know who my enemy is, the depression and sadness remain.

To keep myself in check and knowing I’m prone to isolating when I feel vulnerable and overwhelmed, I immediately instituted daily rules of engagement. I need order in the chaos so I can live and hopefully thrive. As my body heals from surgery, I’ve added additional rules to my list of three.

Rules of Engagement

Rule 1: When I get out of bed in the morning, I stay out of bed until bedtime.

Rule 2: I change out of my pajamas and get dressed.

Rule 3: I wash my face, brush my teeth, put on my usual makeup, and fix my hair.

Rule 4: Purposefully making “dates” with friends so I can remain connected to my precious community. Answering texts and phone calls from family and friends who are far away. Again to connect and limit my tendency to isolate.

Rule 5: Performing a needed task every couple of hours for at least 15 minutes so I don’t simply sit and read or zone out. This means writing down simple attainable tasks.

Rule 6: Adding in daily play and pleasurable tasks like reading, going for a walk, listening to music, or cooking.

This method works for me because I like a framework. I like tangible accountability. The order is grounding and feels safe. And yes, I’m under the care of a therapist with whom I presented my rules of engagement yesterday. She validated my method and even added to the list.

As I forge ahead in cancer treatment, I vow to be open about the good, bad, and ugly. I’m here to share in your community and to be enveloped with love and support from mine. Cancer, like other serious illnesses, is meant to be experienced in community. The support and love from community engagement are the energy boosters that make the work a little easier.

Thank you for reading. I appreciate you sharing my posts.

If you are struggling with mental health or know someone who is, here is a helpful link.

Desirre Andrews, RN, BSN, CPM, RM

TikTok: @des.andrews

Instagram: @desirreandrews

Living with Death in Pursuit

Grim Reaper Wallpapers – Wallpaper Cave

Every day I get up and prepare for the day ahead. I connect. I attend nursing school. I study. I go to clinicals. I exercise. I laugh. I grieve. I love people. As always, I show up.

It’s a beautiful, purposeful, and yes, painfully normal existence knowing I am living with death in pursuit.

Death is growing inside of me. Its sole purpose is to proliferate and kill everything healthy from the inside out. What it cannot touch is my soul. It cannot take away what makes me, me.

I absolutely choose life. Yet, I have no fear of death. I know leaving this corporal body and returning to heaven where those I love are waiting. Where there is no death, no pain, no suffering, and an abundance of love, joy, and peace for eternity.

Even knowing what comes next after this physical world, I’m in NO WAY ready to leave this plane of existence. I have a deep call to live the years my mother and brother Jay didn’t get with the purpose of the betterment of others. I adamantly believe I have 50 more years on this Earth to pursue and answer what I have tried repeatedly to dismiss and run away from.

As difficult as it is to admit, my life is no longer the normal I have come to expect and function within. I am no longer within normal limits. I am sick though I appear perfectly healthy. I am ill though I feel well and strong.

I choose life and have no plans to lie down on the proverbial train tracks allowing pursuing death to win without a fight. I am in the battle of my life.

In a few short days I will be meeting be having more imaging, lab tests, and meeting with an interdisciplinary team of oncology experts to determine the most effective treatment path. In reality my odds are pure sh*t. I have little statistical opportunity to beat this grim reaper. AND I also know statistics do not tell the whole story. I truly have either 0% or 100% option here to live or die.

I choose life. I choose the fight.

Don’t you dare count me out.

Your prayers, check-ins, thoughts, and love are always appreciated. I dare you to show up with me and help me continue to choose life.

Pax,

Desirre

No One Expects the Spanish Inquisition

Or cancer for that matter.

Please, take a few deep breaths…I have cancer. Yes, cancer. I have a malignant mass on the head of my pancreas. It’s a 2cm miniature death star called adenoma sarcoma (adenosarcoma). I will call it Addy for short. I don’t know how long Addy’s been growing inside of me. Pancreatic cancer is often a silent killer leaving the unsuspecting host feeling quite normal without specific signs or symptoms. I’m among the more fortunate hosts with an early warning system prompting me into care earlier than many.

Leading Up

As August 30, 2022, unfolded, I became jaundiced. I had lab work drawn and a urinalysis performed. I had high levels of bilirubin in my urine, but why? The next day I went to my assigned hospital clinicals while waiting for lab results. When I finally received the lab results, my clinical scholar walked me to the hospital emergency department. I thought maybe I was taking too many supplements or somehow picked up Hepatitis as a way to explain my jaundice and obviously angry liver.

The ED team saw me right away and drew more labs. Then I was sent for a CT scan. Thirty minutes later, while sitting alone wearing my nursing school scrubs in an ED room, my life turned upside down. The PA came in and apologetically shared the results with me. “You have a 2cm mass on the head of your pancreas.” I think she said she was sorry and other things, but I cannot clearly recall anything else. She was kind and seemed shocked by having to break the news to me.

After the Diagnosis

The first word I uttered when the PA left was a slow, emphatic f*ck. Next, I phoned my husband, Mitchell. He drove up to the hospital while I was being admitted. It was the longest 90 minutes I had ever spent waiting for him.

CANCER. BIG BAD CANCER. CANCER that kills swiftly. Me. That was inside of ME. Many reading this may wonder how I knew it was cancer without further screening. Pancreatic masses are nearly always cancer. It is so rare for them to be benign it’s not something to consider. The questions became: Is it isolated or has it spread? How bad is it? Will I even get the opportunity to fight it, or has it metastasized?

I went on to spend 3.5 days in the hospital and had two ERCP procedures to take biopsies and to place stents to allow proper flow through my biliary and pancreatic ducts.

During those 3.5 days, I made more personal phone calls than expected to share the news. I live and breathe community. This was no time to be my usually private self. Not only do I need community surrounding and supporting me, but my family also needs it too when the dark days come.

Today

I received the results yesterday. The mass, as expected is indeed Addy. Currently, there is also one other area being infiltrated with cancer cells is the common bile duct. It is not the best worst news, and by far not the worst worst news.

I GET TO FIGHT.

I was recommended to an oncologist who specializes in pancreatic cancer. I have an appointment in 3 weeks.

That’s all I know right now.

Please check back here for updates as I chronicle my journey. And please if you text or call, know I am still in nursing school and living life for today and tomorrow. I may not respond right away.

I am in it to win it.

Please feel free to place me on your prayer lists or share with others who will pray for me. I know God is here with me. I am peaceful and without anxiety or fear. I feel the armor of God upon me.

Pax,

Desirre

Picture attribution Credit: JOHN BAVOSI/Science Source